ramyisback1989.bsky.social

Long covid and mecfs warrior

👤 Joined on 10 novembro 2024

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618

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  • 10 Kas 2024, 20:15
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @ramyisback.bsky.social
  • 14 Kas 2024, 16:05
    ✏️ Kullanıcı adı değişti: @ramyisback.bsky.social → @ramyisback1989.bsky.social

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Toni Bowen
30 outubro 2026 22:12

Yay Ramy! I have wondered how you’ve been doing. You got me onto the Body Battery thing, and it’s really helped and I’m very grateful. Take care.

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1 warm day in a week. I hadn’t slept in 3 days from the cold. Slept finally. My doctor said to my abuser that I am slowly dying. They didn’t care. Now that’s being accelerated. Haven’t had a baseline since 2020. Now I have no heat. They truly don’t care if I live or die.

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i don’t know how it compares to other smart watches. i went with an apple watch because other apple users can track my activity (not the vitals, just stand hours, workouts, etc) and my mom follows me like a hawk. the one day i didn’t wear it, she called immediately to make sure i was still alive😂😂😂

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Virtual IEP mtg with school was way less contentious than expected (went very well, happy with the results) but WAY longer than expected. An hr and 15 min. Somewhere in that last half hour I handed the computer to my husband, put on sunglasses, and laid down. Then I laid motionless for 3hrs. #MECFS

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no problem. it also measures blood oxygen levels and heartrate, which i rely on as well my apple watch is one of my most important tools for measuring how i’m doing. i mean, i always subjectively feel awful, so it’s good to have a tool that provides objective measurements behind those feelings🫠🫠🫠

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