Debya

Something Chronic

Something Chronic

somethingchronic.bsky.social

Mostly bedbound by severe #ME/CFS #POTS #EDS #MCAS + more. Chronically hopeful for better days. Determined to fight against injustice so people with ME + Long Covid are treated with the same belief, respect + kindness as any other serious physical illness

👤 Joined on 01 décembre 2024

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  • 01 Ara 2024, 21:07
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @somethingchronic.bsky.social

❤️ Beğendiği Gönderiler

Natacha
30 octobre 2026 23:27

Francesca Albanese on how our mainstream media is part of the genocide in Palestine.

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Matt Lazell-Fairman
30 octobre 2026 23:27

Thanks. I’ve had some slow glacial improvement since my relapse, and know the improvement may may not be linear. I’m hopeful. But he‘s 84 and not in the best health.

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Colleen Steckel
30 octobre 2026 23:27

That being said. I have had varying levels of function over the years. At times the future looked very bleak and then I had improvement. Sometimes from treatment... sometimes for no apparent reason. I am to the point where I never say never. Hope for the best & plan for the worst.

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Colleen Steckel
30 octobre 2026 23:27

5 miles can be the same as 5,000. We can only do as much as we can do safely. It's hard for many to understand the reality.

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Matt Lazell-Fairman
30 octobre 2026 23:27

My dad lives in a nursing home 5 miles away. It’s been a year since I was well enough to visit and since my relapse it seems quite possible I’ll never see him in person again. #MECFS

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