While hospitalized for myopericarditis, I got offers of support groups, occupational therapy, physical therapy, & a home health aide. Myopericarditis is way less life-changing than ME/CFS. But when I got that, no resources were offered. Startling to have an illness that society deems worthwhile.

Show Post

#me/cfs #longcovid people, Advil re takes the edge off for me but I don’t want to overdo it because it’s not good for your organs. I try not to take more than one dose a week but really struggling right now. Anyone else use anti inflammator meds? How frequently?

Show Post

Yes, I would say so.

Show Post

🧵 ME Research UK: Orthostatic intolerance is profoundly limiting and isolating. We are deeply grateful for the insights shared through our recent Symptom Saturday survey, and have drawn together responses about the experience of #orthostaticintolerance. tinyurl.com/OIimpactME #mecfs #cfs #pwme

Show Post

When it feels like everything is falling apart, trust that something new is being built. #recovered #anxiety #eatingdisorder #NeverGiveUp #AlwaysKeepFighting #fibromyalgia #MECFS #Erythromelalgia

Show Post