Pain News Network

Pain News Network

painnewsnetwork.bsky.social

PNN is an independent, non-profit online news service that provides in-depth coverage about pain from the patient perspective, without corporate or government influence. Sign up for our free newsletter here: https://rebrand.ly/survey-powered-4d995b

👤 Joined on 20 noviembre 2024

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  • 20 Kas 2024, 16:32
    🎉 Bluesky'e katıldı - İlk kullanıcı adı: @painnewsnetwork.bsky.social

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ME/CFS & LongCovid are set to be removed from CDC's '28 health survey, making it harder to make the case for funding, research, & treatment. Comments are needed from patients & caregivers. SolveME makes this easy & has a template to copy/paste. solvecfs.org/cdc-me-cfs-l...

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silveryfir
15 septiembre 2026 21:14

It is so sad that Dr Tennant has passed away. He was the only one doing research.

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“How do I do it? On my days off, I #sleep for 15 hours, waking up only to eat & pet my cats. I can’t get out of bed without Norco, morphine, Advil, 7-OH, and Tums.”: www.painnewsnetwork.org/stories/2026... via @painnewsnetwork.bsky.social #ChronicPain #ChronicIllness #career #writing #medications

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That looks like a good candidate for off label trials in people in ME/CFS. I'm not a doctor, that's just my opinion.

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