"Some Recent Observations from @alemmatthees.bsky.social " virology.ws/2026/10/30/t... A rare in-depth insight into how difficult (esp. mentally) surviving with very severe ME is, where very minor activities (such as thinking of most sorts) can trigger postexertional malaise #MEcfs #VerySevereME

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Cheers

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my nephew recently moved to germany and he said that they’re recruiting for ME studies at the *movie theater.* when the german health minister spoke about long covid a few years ago and dedicated funding to post-infectious diseases, they meant it. it’s incredible

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Ah! Just spotted myself in that video - the pasty-faced one in a blue shirt, sitting next to the then APPG chair, Dr Des Turner! I was APPG secretary at the time, while on the staff of the @meassociation.org.uk. I loved my Parliamentary time - I did their admin for 8 years until 2011. #APPGME

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Beth Dobbin has written to Andy Burnham to ask for increased funding for ME research. We are working with her to amplify her message, and you can help (if capacity allows). Write to your MP to back her call - to make things easier, we have a template for you. docs.google.com/document/d/1...

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