Congrats to James Frith MP, newly appointed as the Minister for Health Innovation, with responsibility for ME. I’ve written to him on ME emphasising that given the numbers, and the length and extent of suffering, ME represents a significant burden at personal level, to society and to our economy.

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To continue to put on the pressure, I’ve tabled three new amendments for next week’s Report stage of the Health Bill. Each asks the government to have regard to the needs of persons with long-term, complex or fluctuating conditions - #pwME 👇🏽 Thanks to @actionforme.bsky.social for help with these.

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Too many #pwME tell me of NHS services where there is no accommodation for their ME related needs, and engagement sets them back rather than helping. I’ve written to minister Karin Smyth MP asking that the new Single Patient Record includes information on such needs - a sensible low cost measure

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Kapalı içerik

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Kapalı içerik

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