atranscendedman.bsky.social
Transparent to the transcendent. Building TrialPilot - https://www.trialpilot.app/ https://fnih.org/patient-engagement/patient-voices-fnih/long-covid-struggle-inspires-urgency/
👤 Joined on 15 November 2024
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@atranscendedman.bsky.social'Additional results from RECOVER-AUTONOMIC clinical trials to be shared at upcoming conferences' Presenters will share findings on 2 possible treatments to manage symptoms of severe postural orthostatic tachycardia syndrome (POTS)..some people develop w/Long COVID recovercovid.org/news/additio...
Show PostResearch, especially in a new area like #longCOVID, needs clinical experience, but it also needs the rigour and depth of understanding of advanced scientific training. Science is a specialty (in fact, a whole family of them) as complex and nuanced as any medical specialty. You can't just wing it.
Show PostAn MD is not a PhD. And given equivalent experience, someone with an MD is exactly as well trained to practice science in a given field as someone with a PhD in that area is to practice medicine.
Show PostI'm also really curious if people with autism have more instance of long covid (because there is a lot of overlap between long covid and issues that tend to affect autistic people, like MCAS).
Show PostThe limitations that long covid causes might make it difficult to participate in things like clinical trials. But the people who have such difficulties are the ones they need to be looking at.
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